Hospice
Programs
 | There are approximately 2,000 active in
the United States. |
Christian Movement
 | Public infirmaries provided care for dying
people as well as patients likely to recover |
 | Julian, a Roman emperor, and opponent to
Christianity, acknowledged these "owing to the humanity evinced by Christians toward
outsiders" |
Fabiola
 | Credited with bringing hospice care to
western Europe, thereby laying the foundation for current palliative care services. |
 | Inspired by monasteries in the Holy Land |
Cicely Saunders
 | Introduced modern hospice care when she
founded St. Christopher's Hospice in London in 1967. |
 | Christian physician |
St.
Christopher's
 | 70 beds with 54 for cancer and the
remainder by elderly patients who can't function independently |
 | Cancer patient stays 12 days on average |
 | Pets and children are welcome |
 | Long visiting hours |
 | Smoking and drinking allowed |
 | Brompton's
cocktail for pain relief |
 | 80% cost of hospital, with largest
percentage going to salaries |
 | No IVs, respirators, and related devices |
 | Death comes quickly |
 | Family encouraged to participate in death
and sitting with body |
 | Home care program as outpatients |
 | Philosophy: control of pain and other
symptoms, accessibility to medical and nursing care, use of trained volunteers and family
members as caregivers, home care component, bereavement program for survivors |
International Task
Force
 | Critical of the type of terminal care
provided in most hospitals in the early 1970's. |
 | The "hidden" or implicit
standards included:
 | Few people are on the scene. There is, in
effect, no scene. |
 | The "successful" death is quiet,
slipping with little notice. |
 | Attention is focused on the body during
the caregiving process. |
 | Death at right time, with
"happy" staff. |
|
 | Recommended all of the following standards
of care for terminally ill people and their families:
|
Palliative Care
 | Reduce pain and other symptoms to protect
quality of life. |
 | Not curative.
 | Condones neither euthanasia or prolonging
of dying |
 | Active total care of patients whose
disease is not responsive to curative treatment |
 | To control physical symptoms |
 | Goal is healing not curing |
|
Cachement area
 | The area that is served by a health care
agency. |
Connecticut
Hospice
 | In New Haven, America's first, was
established in 1974 |
The National
Hospice Reimbursement Act
 | Requires that full service hospices have
an interdisciplinary team that includes a
 | Nurse |
 | Physician |
 | Social worker |
 | Pastor or Counselor |
|
Essential Hospice
Services
 | Must be available 24 hours every day.
|
Saint
Christophers
 | Well acquainted before admission |
 | A process, not just a place |
 | Affirmation of human contact |
 | Family is both a provider and recipient of
care |
"Mother's
Last Moments"
 | The daughter's response to "a hospice
vignette presented in the text, was "It was really right....and she was ready to
go."
|
Place of Hospice
Care
 | At home |
 | At a medical care facility |
 | Adult respite care |
 | Hospice day care programs |
"Mrs.
Doe"
 | The nurse who worked with "Mrs.
Doe" in another hospice case
 | Taught Mr. Doe how to give his wife good
skin-care. |
 | Brought in a physiotherapist to teach Mrs.
D. breathing exercises. |
 | Listened carefully to Mrs. D's needs and
answered her questions.
|
|
Seven-year-old
Marie's
 | Three unsuccessful kidney transplants |
 | Experiences during her terminal illness
demonstrated:
 | the lack of success of traditional medical
care in comforting the dying child |
 | the lack of active involvement of the
family. |
|
AIDS
 | A recent survey shows that most hospice
programs provide a full range of services to AIDS patients without bias.
|
Marginal People
 | In general, people who are not part of the
mainstream culture, such as prisoners, the homeless, and the impoverished
 | Die at an earlier age. |
 | Receive less medical and social support in
their terminal illness. |
|
Hospital-based
Nurses and Physicians
 | A study has found that hospital-based
nurses and physicians
 | Hold positive attitudes toward hospice but
are not well informed about the state of the art in pain relief.
|
|
Pain and Pain
Relief
 | Still cannot be measured precisely. |
 | Remains a primary goal for hospice and for
palliative care. |
Pain Relief
 | Experts suggest all of the following ways
to relieve pain in terminally ill patients without surgery or drugs
 | Electrical nerve stimulation to the skin. |
 | Guided imagery. |
 | Massage. |
|
Uncontrollable
Pain
 | According to a recent study by Dobratz,
uncontrollable pain is experienced by about 10% of terminally ill patients at the time
they are admitted into hospice care programs. |
Last Three Days of
Life
 | "How would you like your last three
days of life to be?" |
 | Hospice patients answered:
 | "I want to be free from pain." |
 | "I want the last three days to be
like any other days." |
 | "I want (a particular person) to be
with me." |
|
College Students
 | Most college students portray themselves
as dying without pain or other symptoms. |
Medicare benefits
 | In qualifying hospice Medicare benefits, a
patient must be certified as having a life expectancy of six months or less. |
New England
Journal of Medicine
 | A major study reported in the New
England Journal of Medicine finds that most physicians refer patients to hospice
programs too late. |
International
Scene
 | On the international scene, hospice
programs are growing rapidly throughout much of the world. |
 | A high priority for hospice programs
around the world is educating the general public and human service professionals. |
Contrasting
Medical Care
Hospitals
 | 80% of terminal care is by hospitals
and nursing homes |
 | Short-term, acute care |
 | Aggressive techniques to diagnose symptoms,
provide treatment, and sustain life |
 | Average stay is now 6 days |
 | Primary goal: rehabilitation |
Nursing homes
 | Convalescent care and extended care nursing
facilities) less-sophisticated care |
 | Care for the chronically ill |
 | Length of stay is longer |
 | 3/4 return to community, 1/4 die in nursing
homes |
 | Skilled nursing facilities have RN on duty
24 hours and skilled paramedical staff |
 | Intermediate care offer less intensive care
with RN or LVN during days |
Hospice
 | Designed especially for terminally ill |
 | Free of physical and psychological pain and
provide a comfortable, homelike environment |
 | Friends and family often participate in care |
 | May be residential care, home care or
supplement care in health care institutions |
 | Goal: pain free and comfortable without
dramatic medical interventions when death approaches |
 | Exchange costly institutional care with
less-expensive home care
|
|