Hospice Programs

There are approximately 2,000 active in the United States.

Christian Movement

Public infirmaries provided care for dying people as well as patients likely to recover
Julian, a Roman emperor, and opponent to Christianity, acknowledged these "owing to the humanity evinced by Christians toward outsiders"

Fabiola

Credited with bringing hospice care to western Europe, thereby laying the foundation for current palliative care services.
Inspired by monasteries in the Holy Land

Cicely Saunders

Introduced modern hospice care when she founded St. Christopher's Hospice in London in 1967.
Christian physician

St. Christopher's

70 beds with 54 for cancer and the remainder by elderly patients who can't function independently
Cancer patient stays 12 days on average
Pets and children are welcome
Long visiting hours
Smoking and drinking allowed
Brompton's cocktail for pain relief
80% cost of hospital, with largest percentage going to salaries
No IVs, respirators, and related devices
Death comes quickly
Family encouraged to participate in death and sitting with body
Home care program as outpatients
Philosophy: control of pain and other symptoms, accessibility to medical and nursing care, use of trained volunteers and family members as caregivers, home care component, bereavement program for survivors

International Task Force

Critical of the type of terminal care provided in most hospitals in the early 1970's.
The "hidden" or implicit standards included:
Few people are on the scene. There is, in effect, no scene.
The "successful" death is quiet, slipping with little notice.
Attention is focused on the body during the caregiving process.
Death at right time, with "happy" staff.
Recommended all of the following standards of care for terminally ill people and their families:
Control the pain.
Provide a sense of basic security and emotional safety.

Respect the patient's intentions as expressed in a living will.

Palliative Care

Reduce pain and other symptoms to protect quality of life.
Not curative.
Condones neither euthanasia or prolonging of dying
Active total care of patients whose disease is not responsive to curative treatment
To control physical symptoms
Goal is healing not curing

Cachement area

The area that is served by a health care agency.

Connecticut Hospice

In New Haven, America's first, was established in 1974

The National Hospice Reimbursement Act

Requires that full service hospices have an interdisciplinary team that includes a
Nurse
Physician
Social worker
Pastor or Counselor

Essential Hospice Services

Must be available 24 hours every day.

Saint Christopher’s

Well acquainted before admission
A process, not just a place
Affirmation of human contact
Family is both a provider and recipient of care

"Mother's Last Moments"

The daughter's response to "a hospice vignette presented in the text, was "It was really right....and she was ready to go."

Place of Hospice Care

At home
At a medical care facility
Adult respite care
Hospice day care programs

"Mrs. Doe"

The nurse who worked with "Mrs. Doe" in another hospice case
Taught Mr. Doe how to give his wife good skin-care.
Brought in a physiotherapist to teach Mrs. D. breathing exercises.
Listened carefully to Mrs. D's needs and answered her questions.

Seven-year-old Marie's

Three unsuccessful kidney transplants
Experiences during her terminal illness demonstrated:
the lack of success of traditional medical care in comforting the dying child
the lack of active involvement of the family.

AIDS

A recent survey shows that most hospice programs provide a full range of services to AIDS patients without bias.

Marginal People

In general, people who are not part of the mainstream culture, such as prisoners, the homeless, and the impoverished
Die at an earlier age.
Receive less medical and social support in their terminal illness.

Hospital-based Nurses and Physicians

A study has found that hospital-based nurses and physicians
Hold positive attitudes toward hospice but are not well informed about the state of the art in pain relief.

Pain and Pain Relief

Still cannot be measured precisely.
Remains a primary goal for hospice and for palliative care.

Pain Relief

Experts suggest all of the following ways to relieve pain in terminally ill patients without surgery or drugs
Electrical nerve stimulation to the skin.
Guided imagery.
Massage.

Uncontrollable Pain

According to a recent study by Dobratz, uncontrollable pain is experienced by about 10% of terminally ill patients at the time they are admitted into hospice care programs.

Last Three Days of Life

"How would you like your last three days of life to be?"
Hospice patients answered:
"I want to be free from pain."
"I want the last three days to be like any other days."
"I want (a particular person) to be with me."

College Students

Most college students portray themselves as dying without pain or other symptoms.

Medicare benefits

In qualifying hospice Medicare benefits, a patient must be certified as having a life expectancy of six months or less.

New England Journal of Medicine

A major study reported in the New England Journal of Medicine finds that most physicians refer patients to hospice programs too late.

International Scene

On the international scene, hospice programs are growing rapidly throughout much of the world.
A high priority for hospice programs around the world is educating the general public and human service professionals.

Contrasting Medical Care

Hospitals

80% of terminal care is by hospitals and nursing homes
Short-term, acute care
Aggressive techniques to diagnose symptoms, provide treatment, and sustain life
Average stay is now 6 days
Primary goal: rehabilitation

Nursing homes

Convalescent care and extended care nursing facilities) less-sophisticated care
Care for the chronically ill
Length of stay is longer
3/4 return to community, 1/4 die in nursing homes
Skilled nursing facilities have RN on duty 24 hours and skilled paramedical staff
Intermediate care offer less intensive care with RN or LVN during days

Hospice

Designed especially for terminally ill
Free of physical and psychological pain and provide a comfortable, homelike environment
Friends and family often participate in care
May be residential care, home care or supplement care in health care institutions
Goal: pain free and comfortable without dramatic medical interventions when death approaches
Exchange costly institutional care with less-expensive home care
Hospice Foundation of America
American Hospice Foundation - Opening New Doors to Hospice Care
The National Hospice and Palliative Care Organization