Dying as a Transition

interactions- upset or comfort
communications - inform or confuse
self-evaluation - undermine or strengthen identity
meaning - thought and behavior

Nursing Care

It has been observed that nurses take more time before going to patients who are terminally ill.

Psychosocial Event

Death begins:
facts are recognized
facts are communicated
may never be told
patient realizes or accepts facts

Middle knowledge

An awareness of one's terminal illness that floats from one level of consciousness to another at various times

Lingering Trajectory

Glaser & Strauss
People are most likely to be regarded and treated as socially dead if they are on a lingering trajectory
this death is more acceptable

Danger List

Placing a patient on the "D. L."

Expected quick trajectory

The hospital staff is acting with a sense of urgency, treatment efforts are intense, and interactions between staff and family are tense

Unexpected quick trajectory

Hospital staff are taking the death of this patient especially hard because they had worked so hard trying to save her.
Personnel called in for immediate life-or-death measures

Institutional Evasions

According to Glaser & Strauss, hospital staff may engage in institutional evasions in order to do what they think really needs to be done for the patient.
Not enough time to do the "official"

Hemophilia

A condition that arises from a defect in the blood coagulation process

SUPPORT Observation Study

Four times out of five, physicians misunderstood what the patients wanted with respect to CPR.
Half of patients who died had moderate or severe pain in final three days of life.
Poor communication with patients
41% never discussed CPR
Did not follow patients stated preference for DNR

Intervention Phase of the SUPPORT

No communication increase between physicians and patients.
No improvement in pain control
Physicians continued to disregard patients' preferences with respect to CPR resuscitation.
Computer projections no more accurate than physician’s
Patient information failed to reach physicians

Experience of Dying

age
comprehension
control
perception and treatment by others
gender roles
interpersonal relationships

Hospitalized patients who died more rapidly

Than others with the same physical condition
Had fewer friends
Had more distant relationships with their families
More often expressed the wish to die.

The Buddhist

The impermanence of human existence at all times.
The first four stages:
A diminishment of the senses, followed by cessation of breathing.
The last four stages:
Involve a series of visionary experiences, concluding with the pure light of death.

Kubler-Ross Stages of Dying

Are said to begin when the patient becomes aware that the illness is terminal
Denial-anger-bargaining-depression-acceptance
Have not been verified by subsequent research.

Kubler-Ross’ Patterns of Response of Dying Patients

Denial

When confronted by death or loss, one may respond with avoidance or denial or by suppressing it
"The test results must be someone else's; there must be a mistake."

Anger

Often manifest as displaced hostility
"If it isn't safe, why doesn't the government put a stop to it!"
Caregivers become the object of hostility
Anger at God

Psalm 88:13-18

But I, O Lord, have cried out to Thee for help, and in the morning my prayer comes before Thee. O Lord, why dost Thou reject my soul? I was afflicted and about to die from my youth on; I suffer thy terrors, I am overcome. Thy burning anger has passed over me; Thy terrors have destroyed me. The have surrounded me like water all day long, they have encompassed me altogether. Thou hast removed lover and friend from me; my acquaintances are in darkness.

Bargaining

Attempting to strike a deal with fate or with God
Good behavior for extension of life
Quest to alleviate suffering and to postpone the dreaded outcome

Isaiah 38:1-8

In those days Hezekiah became mortally ill. And Isaiah the prophet the son of Amoz came to him and said to him, "Thus says the Lord, 'set your house in order, for you shall die and not live.'" Then Hezekiah turned his face to the wall, and prayed to the Lord, and said "Remember now, O Lord, I beseech Thee, how I have walked before Thee in truth and with a whole heart, and have done what is good in Thy sight." And Hezekiah wept bitterly. Then the word of the Lord came to Isaiah, saying, "Go and say to Hezekiah, 'Thus says the Lord, the God of your father David, "I have heard your prayer, I have seen your tears; behold, I will add fifteen years to your life. And I will deliver you and this city from the hand of the king of Assyria; and I will defend this city."’

Depression

Reactive depression
To dying
Sense of loss by burdens of treatment and hospitalization and the financial costs
Disruptions of job and family
Predatory depression
Final separation with world

Job 3:11-12

Why did I not die at birth, come forth from the womb and expire? Why did the knees receive me, and why the breasts, that I should suck? Why is light given to him who suffers, and life to the bitter of soul?

Acceptance

Establish productive ways of dealing with the changed circumstances of their lives.
Not giving up or losing hope

Summary

These are not strict categories.
A variety of emotions may be experienced at any time.
Although style in dying is like style in living, coping strategies may be modification of coping with other stresses.

Kubler-Ross

Does not pay systematic attention to:
The patient's physical condition at the time, including pain and other symptoms.
The type of treatment being received.
The interpersonal climate and communication network that exists around the patient.

Corr's Coping Theory of the Dying Process

Greater empowerment for the dying person.
Attention to how the dying person is influenced by the immediate environment.
Doing away with the concept of stages.

William McDougall's

journal entries indicate that his last weeks "centered on a relief from pain and his determination to exercise his will power as long as possible"
intellectual effort against pain

Multiple Perspective Approach

restricted activity model
distorted or altered body image model
disempowerment model
time anxiety model
journey model